Posted By : Jerry Fuller 12/22/2010

Dear, Family and Friends

 For those of you whom have never met my wife, please allow me to introduce to you Ethelyne Fuller. My wife of 31years

 

This is probably the most difficult email or letter I’ve ever written, love will make you do some crazy things. You see, my wife is in need of a kidney transplant, and I need to let my family and friends know, about her condition. She was placed on the kidney transplant waiting list one month, ago. She has not had to start dialysis yet, but her shunt has already been installed .She will be do doing peritoneal dialysis, which will be performed in our home, with my assistance.

 Aside from her kidney problem she is in good health .My wife dose not drink alcohol, I drink enough beer for the both of us, lol. I am pursuing a living donor for two main reasons, (but there are many others,) kidneys from living donors last, on average, twice as long as kidneys from deceased donors and the waiting list for a deceased donor kidney could be more than 5 years.  Most people can donate who don’t have high blood pressure, cardiac problems or some other medical condition.

 

Here’s some basic information about kidney donation:

 •We are born with an extra kidney – you only need one to live a full, healthy, long life.

•The majority of the donor surgery is done laproscopically, with tiny incisions.

•The recuperation period is generally 2 weeks for those with a desk job and 6 weeks for those whose job entails heavy lifting.

•The surgery would be done at a hospital that has some of the best surgeons in the country.

•All medical expenses would be paid by my insurance benefits.

•Most donors say if they had another extra kidney they would donate again in a heartbeat and that it is one of the best experiences of their life .Would you please consider giving the Gift of Life and hope.

1. Who can donate?

Donors are often a close relative such as a parent, brother or sister, son or daughter but may also be individuals who are not related but have an established emotional relationship with the recipient such as a partner or close friend. Sometimes a donor and a recipient may be incompatible with each other because of blood group or tissue-type and in this case it may be possible for them to be paired with another donor and recipient in the same situation. This means that each recipient will benefit from a transplant that they would otherwise not have had (this is called paired donation). Donors may also offer to give a kidney to someone who is on the waiting list for a transplant but whom they have never met before (this is called non-directed altruistic donation).

2. How will I know if I am suitable to donate?

You will have a thorough medical and surgical and psychological assessment to establish that you are fit and healthy to donate. A number of people who wish to donate find that they are not able to do so because health problems are discovered through the assessment process. Members of the healthcare team involved in your assessment include counsellors, co-ordinators and social workers.

3. Do I need to be related to the person who may receive the kidney?

While it is commonly family members who offer to be kidney donors, there are often spouses, friends, members of the community, or people from the same place of worship who can be highly successful kidney donors. Being related is not a requirement to donate a kidney. 
Are there any risks to the donor?
All operations carry some risk and this is no different for living donation. Donors are at risk of infections (eg chest, wound or urine) and, more rarely, bleeding or blood clots. There is a very small risk of death for the donor: this is estimated at 1 in 10,000 for this operation.

4. Are there any long-term risks?

There is a possibility of a rise in blood pressure and excess protein in your urine. However studies have shown that there is no long-term effect on the health of the donor or your remaining kidney. See Long-Term Consequences of Kidney Donation in “Appendix and Articles”.

5. Will I have to change my lifestyle after donating?

There is no specific reason why you should not be able to lead a normal healthy life as before.

6. ill donating my kidney affect a future pregnancy or fathering a child?

The small amount of data available shows that, having donated one kidney, there is no evidence to suggest an increased risk of complications during pregnancy. A man’s fertility will not be affected.

7. Will I be covered by my health insurance?

You should check with your insurance company.

8. What if I live in a different part of the county from the person I am donating to?

You can still donate. The transplant team can arrange for your donor assessment to take place at a hospital near you if that is more convenient for you. Usually the donation will take place in the hospital where the person you are donating to is cared for. However, different arrangements can be made depending upon individual circumstances for both the donor and recipient. There are organizations that could help you with the travel  and living expenses.

9. How long does the donor assessment process take?

This varies. You should check with your hospital. In general, this will take at  two to six. There is variation depending upon where you live and what tests you may require. Wherever possible, the assessment is tailored to your needs and commitments.

10. How much time will I need to take off work?

Most transplant centers will try to arrange the tests before the operation around your work schedule to minimize disruption to your job. It is sometimes possible to arrange for some of this to be done locally if the donor lives a long way from the transplant center. The operation and recovery period varies depending on surgery, your individual recovery and the type of work you will be resuming.  Many people that have a desk job are back to work in three weeks. If you job is physically demanding, you might need six weeks or more to resume all your prior activities.

11. How long will I be in hospital?

This varies depending on your individual recovery. Many donors only spend one day in the hospital. It is not uncommon for someone to have to spend 2 or 3 days in the hospital to recover.

12. Will I need to take any medication after donating?

You will need to take some painkillers immediately after the operation and during the recovery period. However, you should not need any long-term medication as a result of kidney donation.

13. What about follow-up?

You would usually be seen by the transplant team between two and six weeks after donation.

14. Do some donors have trouble making the decision?

Some people make the decision easily. Others go through some soul searching before deciding. Being afraid of donating a kidney or feeling guilty about not wanting to donate is quite normal. The only “right” decision is the one that makes you, the potential donor, feel comfortable. Finding out more information about living donation and what it involves may help you with this decision.

15. Can I speak to somebody who has donated?

Your coordinator at your local transplant center should be able to arrange this for you. Also, ask about the Living Kidney Donors Network Mentors Program.

16. What if I decide that being a donor isn’t for me?

You have the right to withdraw your offer at any time and you would be supported in your decision by the transplant team.

 

Please feel free to email me for more information, ( jerry.fuller@gmail.com ). My wife has no idea that I have written this letter or email.

I hope that all the above information answers all concerns and questions . 

  

Sincerely, Jerry Fuller